In 2002 a small group of parents of children with Cystic Fibrosis (CF) decided to raise money for Cystic Fibrosis WA (CFWA). As a result of this, the 65 Roses Grand Ball for CF was born and $42,986.00 (profit) was raised.
Realising the potential we had to raise significant funds,
and driven by the need to do all we could to make a
real difference for people living with CF, in 2003 we
decided to raise money for both CFWA and CF research
Since then, our very dedicated and extremely hard
working group of parents, people with CF, and friends
of both, have continued to organise the Grand Ball for
Cystic Fibrosis in WA.
The most important thing to our committee is research...
Why? The answer is best told in the numbers. Life expectancy
in Australia for people with CF in the 1960s was five years.
Today is 35 years.
Deaths in Australia of younger people have, thankfully, declined dramatically since 1998. Between 1998 and 2004 there was a 70% fall in the number of deaths of people with CF aged under 20 years. The primary reason for this decrease is research. Research leads to improvements in treatments which leads to longer, healthier lives.
Unfortunately there is still no cure for Cystic Fibrosis.
This is something we hope to change...